It is an amazing privilege to see my daughter grow each day. Every day, with every breath, she is a living miracle. Each day she grows stronger. Her tiny little system continues to function well. We are so very blessed.
Today, she got to spend time without the lights. We call it the beach because of the little sunglasses she has to wear under the light. It looks like she is laying in a tanning bed or on the beach.
She will not get to completely forgo the lights yet. But, this is a step in the right direction!